You know those YouTube videos where girls get guys to define what girl products are? They can be hilarious. Well, I decided to put my own spin on it and ask some of my healthy friends to define common chronic illness terms that most chronic illness warriors would know.
The results definitely surprised me, and it went even better than expected.
Spoonie
“Is it when you’re too tired to chew so you eat soup?” -Roxie
I mean, she’s not wrong.
“One who brings a clean spoon everywhere to measure correct amounts of medicine.” -Dave
“The little spoon when you cuddle.” -Demi
That is one of the most common ones I’ve seen in my years as a chronic illness warrior.
“People with spoons.” -Kristy
(You’ll notice Kristy got almost all of these correct. She’s impressive that way.)
Spoon Theory
“The difference between big spoons and little spoons for dessert. What’s with all the spoons? Or it could be the big spoon or little spoon of cuddling.” -Roxie
“Spoon theory: the concept of growing accustomed to taking prescriptions over a long period of time.” -Dave
“The idea that spoons are the superior utensil.” -Demi
Are they though?
“Spoon theory is used in the mental health community as well, it describes the finite resources we have to cope with our stressors and navigate our days. When we have used our last spoon, it’s difficult to continue/finish the day strong.” -Kristy
Yeah, Kristy pretty much nailed it, but it’s definitely worth reading the whole original piece if you have a moment.
Chronic
“I feel like I should know this one but hmmm I think it has something to do with (I know this is wrong) bones?” -Roxie
Not quite.
“Always or never ending.” -Dave
“Weed.” -Demi
Apparently, but that’s not the way I meant.
“Habitual/continual impact on life and functioning.” -Kristy
Dave and Kristy got it.
Acute
“Really sensitive to something?” -Roxie
“Penny. Jk. Difficult or severe. Come to think of it she can be difficult.” -Dave
This is Penny.
“Not bad or minor.” -Demi
Yes, but the opposite.
“Severe or intense, describes the level of impact on life and functioning.” -Kristy
IBS
“Irritable bowel syndrome” -Roxie
Yep.
“Intestinal breakdown symptoms” -Demi
Pretty close.
“irritable bowel syndrome” -Kristy
CFS
“Confusing face syndrome” -Roxie
(It’s an inside joke . . . Roxie makes the best confusing faces.)
“Child & family solutions” -Dave
“Chronic fissure syndrome” -Demi
“Chronic fatigue syndrome.” -Kristy
And Kristy told me she wasn’t sure, but as usual, she got it right.
Flare
“When you react to something badly? I feel like I’ve heard this one before but for the life of me I can’t think of it.” -Roxie
“When A quiet and sneaky issue that lies dormant decides to attack.” -Dave
I like this description.
“Burning. On fire.” -Demi
“A sudden and acute onset” -Kristy
Yep.
Herxing
“When she decides to leave. Her x ing haha get it haha.” -Roxie
Did I mention how much I love Roxie?
“Laughing at a dog so hard your stomach muscles starting to contract involuntarily.” -Dave
“Something about a hernia I don’t know LOL” -Demi
It’s the most logical guess.
“No idea, don’t even have an idea, sounds like witchcraft.” -Kristy
Herxing is named after the Herxhiemer reaction, which can sometimes be used interchangeably with the word “flare.”
Normal people sick
“When a regular person has a cold.” -Roxie
“Having a serious Non-chronic illness but feeling much better than chronic.” -Dave
“Not very sick.” -Demi
“What it looks like when the average person is sick with typical symptoms – able to recover, not chronic.” -Kristy
I think they all got close, but not quite. “Normal people sick” is most commonly used to refer to when someone with a chronic illness has a generic cold or flu on top of everything else.
BF
“Best friend there’s so many things this could be” -Roxie
“Blue flu. Bio fluctuations. ” -Dave
“Big fart.” -Demi
“Bodily function?” -Kristy
Brain fog. 😉
Leaky gut
“When your stomach doesn’t like what your eating” -Roxie
Trueish.
“When your gut releases toxins” -Dave
“Also farts.” -Demi
“A gut that leaks in all the wrong ways, due to leaks in the gut.” -Kristy
Leaky gut, also known as permeable gut, is when the lining of your intestines has been eaten away by too much of one thing, making your body unable to tolerate that food anymore without it leaking through into places it shouldn’t be in your body when it wasn’t properly digested.
But every time I used the term leaky gut, for a while, everyone would assume I meant diarrhea.
Autoimmune
“When your immune system is compromised?” -Roxie
“When our body’s national guard sleeps all day and lets any virus or pathologin illegally immigrate.” -Dave
Oh Dave.
“Doesn’t get sick from cars.” -Demi
Creative, I like it.
“A set of disorders including but not limited to Lupus, wherein the immune system turns evil and the cells begin working adversely/attacking themselves… but even if WebMD categorizes your symptoms as Lupus, it is rarely Lupus…”
Yep.
Well that was fun. What other terms should I get them to define?
*laughs* This is wonderful, Sara! So much fun.
That awkward moment when I’m chronically ill and had never heard a couple of these.
Lol! That’s how I always feel watching those girl product videos. 😀
LOL, great post, Sara! Not sure you’ll recognize my name, but we were both in the Finding Strength in Christ Google+ group for a while.
As someone with Bartonella and Babesia, I use these terms a lot, and after reading your post, I can only imagine what my healthy friends must think they mean. Especially when I talk about herxing! 😉
HEY! I remember! Wow, that was a while ago.
Lol! You should definitely ask them 😀
Yeah, like your friends said. For the most part they have no clue. Hugs.
Some of those answers were kinda sad… But also HILARIOUS 😆. Now I want to do something like this with my classmates…
~Anna Grace
ideasofanna.blogspot.com
Exactly XD you totally should! And lmk how it goes 😁